Tuesday, January 1, 2019

Mindful Caregiver 2019

1/1 Accepting

We accepted the offers that came out way via text, and now there's a plan for a nice little birthday. The whole birthday was a sore spot with me. Elaine had posted a hopeful note asking who would come if she had a birthday party. Some out of town people said they wished they could, but only 2 cousins responded at all. One had a conflict she had forgotten, and the other would be working on the actual birthday. When I spoke with my niece with the conflict, she kept  trying to suggest other people who might come. Nobody comes of that group. Ever. It just sent me into a tailspin, thinking of Elaine 's friends who aren't.

This little plan dropped into our laps suddenly, and Elaine has ordered a cake she is very excited about. My friend is coming for lunch, and her cousin is spending the night. It will be great, and all we had to do was accept what came out way.

1/2 Productive

Things got done. Progress was made. Okay, so it wasn't a dawn to dusk spring cleaning or a shop til you drop day in the city, but things got done. A shower was taken early, some thrift shopping was enjoyed. Plans were made and executed for Ron's birthday surprise. My address book was located, and banking was checked. Elaine was awake most of the day and ordered pizza. She helped me carry the thrift store table in.

1/3 Joyful

It's Elaine's birthday, and she says joyful!  She was pleased with her cake and the birthday balloon I got, but I was an idiot who forgot her wallet and had to make 2 trips to the store. Elaine took a long nap, but she's excited about meeting the family for birthday dinner. This was Plan B, quickly  formed after our day guest got sick. No chance we want to risk infection!

Chris is staying overnight, and I will take him to the airport in the morning.

1/4 Adaptable

We started the day early, with my trip to the airport. Elaine was awake when I returned, but I napped before our adaptation began. It was cloudy, so we took the dogs to run together. Elaine hadn't been out with us in quite a while!

We rested awhile before heading to Cocoa Beach, which had been out only tentative plan.  Elaine wasn't feeling well as we got closer, but she rested, then napped, then she joined with the family for a visit. We had thought she might swim, but she didn't. Things just happened, or they didn't. We adapted.

1/5 Observant

Elaine announced that she wanted to get out this morning. Then a friend called, and it was a long conversation, so it was actually after noon when we left. We were headed to a wildlife rescue, but quickly she realized that she wasn't going to hold out for quite such a long time. We turned to the West and headed for Green Springs. We found Mariner's Cove along the way, and we moved on to Gemini Springs as well. We stopped at Pell's Nursery on the way home to get plants and citrus. It was quite a day, with beautiful parks and springs and plants. We observed much, following Elaine's observations about her condition which changed our plans.

1/6 Fearless

We traveled to Daytona Hamburger Mary's for the Drag Brunch. I 4 was worse than usual, so my fearless driving got us there. Then Elaine and Sherri celebrated their birthdays onstage. They were fearless and fierce!

1/7 Patient

We had to be patient during the commute and especially at the clinic. There was a lot of waiting, and the staff had real problems getting a vein. That hurts, but it's also mentally taxing. Then more waiting and a boring test. But our patience was rewarded by a good meal at Cheddars and a short shop  for yarn (Elaine) and at Big Lots.

1/8 Proactive

Elaine met with her recovery coach this morning, and she went to the dentist this afternoon. She has a couple of issues, and she made an appointment with the endodontist. I worked  on the house.

1/9 Humble

Elaine went humbly into the doctor's this morning, accepting that her results would be good. It was! There were no actively growing cancer cells anywhere, and her spleen is shrinking. He took away the V drug.

I humbly accept that I was a nervous wreck. It was physically and psychologically overwhelming. I am not sure of the cause; I know that waiting for the test results was a part of it, but hearing good results did not shake it.  I believe it was partially due to a lapse into Lyme disease symptoms, but it is humbling when you don't even understand your own feelings.  I am a work in progress.

1/10 Accepting

It wasn't the best day. My early morning walk was disturbed by  an intruder of sorts, and the time came quickly for Elaine's endodontist appointment.  I waited until they knew they were doing a root canal and left for a bit while it was done. Elaine was in a good bit of pain, but we accept that the procedure had to be done.  She was having pain and is more likely to have a problem with infection during the remaining chemo. It was very expensive, and her insurance is maxed out. She even made a Go Fund Me to try to get contributions.

It was a day to do what had to be done, to accept that circumstances aren't always in your favor. I was frustrated and had to let it go too.


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